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Welcome

This is for the heart families. I know you are tired, yet would travel to the ends of the earth or swim the depths of the sea to protect your heart warriors. I know the sleepless nights, the special care, the detailed planning you put into every effort, and the quiet ache you feel when you are alone in your room at the end of the day after you have peeled off your armor. I also know the incredible joy of every victory, and the magic felt in the very moment of every breath. I created this page with you in mind. I'm a heart mama myself. Our battle is HLHS and we have been in the surgical ring eight times. This is a place for faith, inspiration, hope, real stories, and shared heartaches.

We would love to be email friends!

Share your story, sign up for our newsletter, or simply stop and visit for a while to hear from others who have been there. 

Want to feel inspired? Check out our blog,  Everyday Living

 

Are you looking for more information about the CHD Tablet Talk program? Head on over to our partners at CHDTabletTalk.com

You can also visit the founder, Faith Brackett at FaithBrackett.com. Faith is an adult HLHS warrior, and a fierce advocate for the CHD community. 

Are you feeling broken-hearted and really need to dig deep? I would encourage you to visit Jenny's page and learn more about her book, The Journey of Faith and an Open Heart.

 

Want to stay up-to-date on recent news? Subscribe to our website so that you can receive release notifications for CHD Magazine. We are very proud of this publication and distribute our quarterly issues through the Heart Community Collection. If you would like to contribute to the magazine, we are always accepting submissions for consideration. 

 

Need some incredible resources or do you have CHD resources you wish to promote? Please feel free to visit The Heart Community Collection - an online bookstore founded by Jenny Muscatell, Anna Jaworski and Amy M. Le, where we work hard to bring quality resources to the CHD community. 


Sometimes you just need to know you are not alone. We invite you to visit "Heart to Heart with Anna," the longest-running podcast devoted to the congenital heart defect (CHD) community, and our personal favorite. This show features Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise, and advice. 

If you are in need of Bereavement Support we recommend Bereaved but Still Me, with host Michael Liben, where moving forward does not mean moving away. 

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Hebrews 12:1-2

"Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the pioneer and perfecter of faith."

CHD Heart Princess